If you are a parent of a child with a Metopic Ridge or Metopic Craniosynostosis we know how worried you feel about your child and the future. We are parents of a child born with Mild Metopic Craniosynostosis and Autism, we are here to help with your decision to go ahead or not with surgery. It will be the hardest decision of your life and it carries significant risks that you should be aware of. We read thousands of pages of documents and studies before making our son’s decision and it was still extremely hard. Our outcome so far has been miraculous and we believe our son James got a second chance at life. Please read through the pages in this site to inform yourself and get acquainted with Metopic Craniosynostosis and the possible cognitive development affectations it can produce.
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Disclaimer: We are not doctors or hold any medical degrees, we are just parents that lived through the experience and undergoing recovery from CVR FOA surgery while undergoing guided therapy for cognitive behavior and Autism. Any decision to go ahead with surgery or other treatment should be done by a qualified medical professional along with the parents. The purpose of this site is to make public the struggles we have gone through and how our son is growing physically and mentally after the surgery.